By Paula Neidorf
Hope takes on a new meaning after child loss and is especially profound after losing an only child.
I am a mother who lost her only child, a son, at 28.
None of the definitions of HOPE make sense to me – the mother of an only child with no grandchildren. I have no hope for a legacy, since my heart was ripped from my body, other than what I try to create while I am still here on earth.
And it is an insurmountable challenge to create a long-lasting legacy.
Definitions, like the one below, are empty, meaningless to me.
According to the Merriam Webster dictionary, the definition of hope is:
“desire accompanied by expectation of or belief in fulfillment came in hopes of seeing you also : expectation of fulfillment or success no hope of a cure when they were young and full of hope b: someone or something on which hopes are centered our only hope for victory c: something desired or hoped for great hopes for the coming year 2 archaic : TRUST, RELIANCE.”
Words such as “fulfillment, success, victory, desired, trust” do not embody hope for me any longer.
BEFORE
I had hope that I would raise a wonderful, loving son, a kind, generous, good person. That hope came true.
I had hope that he would find his happiness, passion, dreams for the future. That hope was in progress.
I had hope that one day, I would live closer to him, or him closer to me, instead of 3000 miles away.
I had hope that he would remain healthy, and live a long life filled with adventures.
I had hope that he would live the life he dreamed and longed for.
I had hope that he would one day be a successful filmmaker who won many awards for his documentaries, his dream.
I had hope that one day he would marry or find a life long companion.
I had hope that one day I might become a grandmother.
I had hope that one day as I became older, he would look after me, as I had done for my mother.
I had hope that all I saved over the years, memorabilia, assets, would eventually become his.
I had hope that he would not mourn my loss after I passed on, and would be surrounded by loving friends who would comfort him.
I had hope that he would survive the kayaking accident that took his life.
But since my son died, HOPE changed its definition. I was never consulted.
Hope is replaced with hopeless or hopelessness, all sounding somewhat morbid and unexplainable to those who haven’t lost an “only child.”
Today, hope looks like this:
I hope that I can get out of bed every day.
I hope I can sleep the whole night through, without disturbing thoughts.
I hope I can find some PURPOSE in life to fill this huge, empty and cavernous hole that seems to get larger day by day.
I hope that I do not suffer any longer, the painful effects of grief.
I hope that loneliness and grief will not want to be my constant companion.
I hope I can go to the grocery store without having a crying breakdown in one of the aisles when I see my son’s favorite food.
I hope I can find some kind of satisfaction or pleasure in life.
I hope that my phone rings with someone who still wants to speak to me.
I hope that people who are still in my life will continue to be patient and non-judgmental of my grieving and constant longing for my child.
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I hope that I never hear another platitude such as “things happen for a reason” or “he is in a better place.”
I hope that people realize that I will NEVER be the same person I was before my child died.
I hope that people understand I will never heal from this loss.
I hope that the world could be more empathetic and knowledgeable of the deep devastation and wide-reaching effects that the loss of a child brings, after being a parent.
Hope is no longer a desired wishful outcome, something wonderful, something positive.
Hope today is about “existence” and getting to the next hour or the next day.
My hopes are so different now. And though they might sound easy to attain, they are sometimes unreachable, at least for today .
Hope is not what we want sometimes. It is just a dream, a desire, and I have learned the hard way, I cannot direct or control hope.
It has a mind of its own.
Some days, MOST DAYS, I just wish I could remove the word HOPE from the dictionary and from all my conversations with others who have not lost a child, and replace that word with SURVIVAL.
How do I explain this to those who have not lost a child or an only child?
I can’t.
Laura Morris says
Paula, I feel the same way as we lost our only son, Zack, at 18 in accident in Peru on May 24, 2019. I just don’t know what hope is anymore but I do try each day to live in a way to honor Zack. It is oh so
very hard. My friends are still there but I know they want me to be ok and I try but I won’t ever be the same. There are glimpses where I can laugh or pretend to be who I was but when I turn away I know it was just a fleeting shadow of myself.
Paula Neidorf says
I am so sorry Laura, that we reside in the same club. All we can do is try to live in honor of our children, but it is so difficult. Take care of yourself. Our loss, was also in 2019. Paula
Robin Withrow says
Paula, I am glad we found each other and unfortunately we have found each other due to the pain of our losing our only child. May we find our supposed purposes to go on. We am not there yet! I fear we never will.
Paula Neidorf says
So true, Robin. Even if we do not find our supposed purpose, at least we have each other and those who understand this pain! Love, Paula
Kunal’s mom Padma says
Paula I agree with every word you wrote.
I lost my only son Kunal 2 months ago in an accident. He was only 25.
I am a divorced single mother but my whole life was centered around my child. I quit my job to stay home with him first 5 years because I couldn’t leave my little baby with anybody. I waited to divorce my husband till Kunal went away to college and fought to keep the house because it was Kunal’s home since he was 4.
He was brilliant, had a great sense of humor and loved, loved to read and discuss and I was his most available and favorite audience. Being away from most of my family, I was planning to retire and travel since Kunal had been working at a great job for last 2 years- he was settled.
Then nov 1, I get the dreaded visit from cops. Now I have no purpose in my life, why am I even working? Why am I alive when Kunal is not? Just questions with no answers and this huge hole in my heart. I feel guilty to be alive, guilty to be doing routine things like drink tea and eat food. How does one handle this?
Paula Neidorf says
Padma, I am so sorry for your loss. It is so difficult, to describe this obliteration to anyone, but those who are living it. The thing that helps me the most, is engaging with parents walking in my shoes. There are two groups I actively participate in. TCF- Loss of an Only Child/All Your Children (on Facebook) and Alive Alone, which is a support group where people reach out to each other with cards on anniversaries, etc. Alive Alone has recently started zoom groups. If you haven’t engaged in some of these support groups, please try. It has helped me connect with people who understand. Sending you virtual hugs.
Kunal’s mom Padma says
Thanks Paula. I have joined the TCF Facebook group you mentioned, which is definitely helpful. Will check Alive Alone. Virtual hugs to you too.