By Paula Neidorf
Hope takes on a new meaning after child loss and is especially profound after losing an only child.
I am a mother who lost her only child, a son, at 28.
None of the definitions of HOPE make sense to me – the mother of an only child with no grandchildren. I have no hope for a legacy, since my heart was ripped from my body, other than what I try to create while I am still here on earth.
And it is an insurmountable challenge to create a long-lasting legacy.
Definitions, like the one below, are empty, meaningless to me.
According to the Merriam Webster dictionary, the definition of hope is:
“desire accompanied by expectation of or belief in fulfillment came in hopes of seeing you also : expectation of fulfillment or success no hope of a cure when they were young and full of hope b: someone or something on which hopes are centered our only hope for victory c: something desired or hoped for great hopes for the coming year 2 archaic : TRUST, RELIANCE.”
Words such as “fulfillment, success, victory, desired, trust” do not embody hope for me any longer.
BEFORE
I had hope that I would raise a wonderful, loving son, a kind, generous, good person. That hope came true.
I had hope that he would find his happiness, passion, dreams for the future. That hope was in progress.
I had hope that one day, I would live closer to him, or him closer to me, instead of 3000 miles away.
I had hope that he would remain healthy, and live a long life filled with adventures.
I had hope that he would live the life he dreamed and longed for.
I had hope that he would one day be a successful filmmaker who won many awards for his documentaries, his dream.
I had hope that one day he would marry or find a life long companion.
I had hope that one day I might become a grandmother.
I had hope that one day as I became older, he would look after me, as I had done for my mother.
I had hope that all I saved over the years, memorabilia, assets, would eventually become his.
I had hope that he would not mourn my loss after I passed on, and would be surrounded by loving friends who would comfort him.
I had hope that he would survive the kayaking accident that took his life.
But since my son died, HOPE changed its definition. I was never consulted.
Hope is replaced with hopeless or hopelessness, all sounding somewhat morbid and unexplainable to those who haven’t lost an “only child.”
Today, hope looks like this:
I hope that I can get out of bed every day.
I hope I can sleep the whole night through, without disturbing thoughts.
I hope I can find some PURPOSE in life to fill this huge, empty and cavernous hole that seems to get larger day by day.
I hope that I do not suffer any longer, the painful effects of grief.
I hope that loneliness and grief will not want to be my constant companion.
I hope I can go to the grocery store without having a crying breakdown in one of the aisles when I see my son’s favorite food.
I hope I can find some kind of satisfaction or pleasure in life.
I hope that my phone rings with someone who still wants to speak to me.
I hope that people who are still in my life will continue to be patient and non-judgmental of my grieving and constant longing for my child.
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I hope that I never hear another platitude such as “things happen for a reason” or “he is in a better place.”
I hope that people realize that I will NEVER be the same person I was before my child died.
I hope that people understand I will never heal from this loss.
I hope that the world could be more empathetic and knowledgeable of the deep devastation and wide-reaching effects that the loss of a child brings, after being a parent.
Hope is no longer a desired wishful outcome, something wonderful, something positive.
Hope today is about “existence” and getting to the next hour or the next day.
My hopes are so different now. And though they might sound easy to attain, they are sometimes unreachable, at least for today .
Hope is not what we want sometimes. It is just a dream, a desire, and I have learned the hard way, I cannot direct or control hope.
It has a mind of its own.
Some days, MOST DAYS, I just wish I could remove the word HOPE from the dictionary and from all my conversations with others who have not lost a child, and replace that word with SURVIVAL.
How do I explain this to those who have not lost a child or an only child?
I can’t.
Rhonda says
Your story is mine. My son was 33. Its been a year, and his birthday was last weekend. I am my best support. The world continues for others. I am forever different and stopped being the rock for others, having found that they don’t reciprocate or see my pain. You are not alone.
Paula neidorf says
We need to be the voice for those who are suffering this horrible pain. Thank you for sharing. Paula
Joyeeta Chakraborty says
I have lost my 12 year old beautiful, brilliant, creative daughter just a week back. She was my only child. My life has stopped….I hate people when they tell me I need to be strong to take care of myself. She was my strength. Its like there is a hole where my heart should be. I don’t know how I will carry on. I dont know the meaning of the words life, hope, tomorrow any more
Paula Neidorf says
Take one breath at a time. That is all we can do. It sounds cliche, but it is true. Build a community of support and grievers like us. It does help. There is a gaping hole where our heart once was, it is so very true. I am so sorry.
Rhonda McLeod says
Ours is a Harsh and unending journey. I do not “move on”, my son is not replaceable. Allow yourself to grieve, however that happens. I meet with my local Compassionate Friends, it is a safe supportive group. Hold fast and hugs from another mama
Margarita Ramirez says
I’m so sorry for your loss, I really am. I lost my only child my beautiful daughter two years ago today
I’m heartbroken I have been crying most of the day, more than usual.. People that haven’t lost a child can’t understand is. As time passes I miss her even more because I have the need to hear her voice and see her..
Margaret Smith says
My darling daughter(what I always called her) is gone too, She was almost 53. Stomach cancer, a painful death. I have 2 granddaughters and 2 great grand children. I’m so thankful for them. I feel empty inside. My passion for life is gone. My only child has left me, 9 years after her father died, also of cancer. I don’t know how to go on. I just am existing not living. I know your pain.
Heather says
I am so sorry. I am sitting here with my eight year old only child (my son) asleep in bed with me. I cherish this moment because I know that in an instant, your story could be my own. My heart aches for your loss. You are building your legacy by sharing his story.
Paula Neidorf says
Thank you, Heather for your words. That is all I can do now, and you have understood, to build the legacy by sharing his story. Treasure every moment with your son. It is nothing we can ever prepare for. Happy Mother’s Day. Paula
Gudrun Schneider says
My son died 7/26/2016 feels like yesterday still in disbelieve your and other walks gives me hope in a world that just keeps on going thank you for sharing and helping me understand that I am not alone and my son is never forgotten just like so many others wish we all not bonded by this but on the other hand thank you for helping others not to feel so alone
Paula Neidorf says
Gudrun, we are not alone, and can express to each other and acknowledge this difficult pain. My heart is broken for you and all of us. Maybe somehow, we can give each other strength. Sending you heartfelt hugs.