By Still Standing Contributor Angela Miller of A Bed For My Heart
Child loss is a loss like no other. One often misunderstood by many.
If you love a bereaved parent or know someone who does, remember that even his or her “good” days are harder than you could ever imagine.
Compassion and love, not advice, are what’s needed.
If you’d like an inside look into why the loss of a child is a grief that lasts a lifetime, here is what I’ve learned in my seven years of trekking through the unimaginable.
1). Love never dies.
There will never come a day, hour, minute or second I stop loving or thinking about my son.
Just as parents of living children unconditionally love their children always and forever, so do bereaved parents.
I want to say and hear his name just the same as non-bereaved parents do.
I want to speak about my deceased child as normally and naturally as you talk about your living ones.
I love my child just as much as you love yours– the only difference is mine lives in heaven and talking about him is unfortunately quite taboo in our culture.
I hope to change that.
Our culture isn’t so great about hearing about children gone too soon, but that doesn’t stop me from saying my son’s name and sharing his love and light everywhere I go.
Just because it might make you uncomfortable, doesn’t make him matter any less.
My son’s life was cut irreversibly short, but his love lives on forever.
And ever.
2). Bereaved parents share an unspeakable bond.
In my seven years of navigating the world as a bereaved parent, I am continually struck by the power of the bond between bereaved parents.
Strangers become kindreds in mere seconds– a look, a glance, a knowing of the heart connects us, even if we’ve never met before.
No matter our circumstances, who we are, or how different we are, there is no greater bond than the connection between parents who understand the agony of enduring the death of a child.
It’s a pain we suffer for a lifetime, and unfortunately, only those who have walked the path of child loss understand the depth and breadth of both the pain and the love we carry.
3). I will grieve for a lifetime.
Period. The end.
There is no “moving on,” or “getting over it.”
There is no bow, no fix, no solution to my heartache.
There is no end to the ways I will grieve and for how long I will grieve.
There is no glue for my broken heart, no exilir for my pain, no going back in time.
For as long as I breathe, I will grieve and ache and love my son with all my heart and soul.
There will never come a time when I don’t think about who my son would be, what he would look like, and how he would be woven perfectly into the tapestry of my family.
I wish people could understand that grief lasts forever because love endures forever; that the loss of a child is not one finite event, it is a continuous loss that unfolds minute by minute throughout a lifetime.
Every missed birthday, holiday, a milestone; should-be back-to-school years and graduations; weddings that will never be, grandchildren that should have been but will never be born– an entire generation of people are irrevocably altered forever.
This is why grief lasts forever.
The ripple effect lasts indefinitely.
The bleeding never stops.
4). It’s a club I can never leave but is full of the most shining souls I’ve ever known.
This crappy club called child loss is a club I never wanted to join, and one I can never leave, yet is filled with some of the best people I’ve ever known.
And yet we all wish we could jump ship– that we could have met another way– any other way but this.
Alas, these shining souls are the most beautiful, compassionate, grounded, loving, movers, shakers and healers I have ever had the honor of knowing.
They are life-changers, game-changers, relentless survivors, and thrivers — warrior moms and dads who redefine the word brave.
Every day loss parents move mountains in honor of their children gone too soon. They start movements, change laws, spearhead crusades of tireless activism.
Why? In the hope that even just one parent could be spared from joining the club.
If you’ve ever wondered who some of the most significant world changers are, hang out with a few bereaved parents and watch how they live, see what they do in a day, a week, a lifetime.
Watch how they alchemize their grief into a force to be reckoned with, watch how they turn tragedy into transformation, loss into a legacy.
Love is the most powerful force on earth, and the love between a bereaved parent and his/her child is a lifeforce to behold.
Get to know a bereaved parent.
You’ll be thankful you did.
5). The empty chair/room/space never becomes less empty.
Empty chair, empty room, space in every family picture.
Empty, vacant, forever gone.
Empty spaces that should be full, everywhere we go.
There is and will always be a missing space in our lives, our families, a forever-hole-in-our-hearts.
Time does not make the area less empty.
Neither do platitudes, clichés or well-wishes for us to “move on,” or “stop dwelling,” from well-intentioned friends or family.
Nothing does.
No matter how you look at it, empty is still empty. Missing is still missing.
The problem is nothing can fill it.
Minute after minute, hour after hour, day after day, month after month, year after heartbreaking year space remains.
No matter how much time has passed.
The space of our missing child(ren) lasts a lifetime.
And so we rightfully miss them forever.
Help us by holding the scope of that truth for us.
6). No matter how long it’s been, holidays never become easier without my son.
Never, ever.
Have you ever wondered why every holiday season is like torture for a bereaved parent? Even if it’s been 5, 10, or 25 years later?
It’s because they really, indeed are horrific. Imagine if you had to live every holiday without one or more of your precious children.
Imagine how that might feel for you.
It would be easier to lose an arm, a leg or two– anything— than to live without your flesh and blood, without the beat of your heart.
Almost anything would be easier than living without one or more of your precious children.
That is why holidays are always and forever hard for bereaved parents.
Don’t wonder why or even try to understand.
Know you don’t have to understand to be a supportive presence.
Consider supporting and loving some bereaved parents this holiday season. It will be the best gift you could ever give them.
7). Because I know deep sorrow, I also know unspeakable joy.
Though I will grieve the death of my son forever and then some, it does not mean my life is lacking happiness and joy.
Quite the contrary. It is not either/or; it’s both/and.
Grief and joy can and do coexist.
My life is more precious now. I live from a deeper place.
I love deeper still. Because I grieve, I also know joy like no other.
The joy I experience now is far more profound and more intense than the joy I experienced before my loss.
Such is the alchemy of grief.
Because I’ve clawed my way from the depths of unimaginable pain, suffering, and sorrow, again and again– when the joy comes, however, and whenever it does– it is a joy that reverberates through every pore of my skin and every bone in my body.
I feel all of it, deeply.
I embrace and thank every blessed morsel of it.
My life now is more rich and vibrant and full, not despite my loss, but because of it.
In grief, there are gifts, sometimes many. These gifts don’t in any way make it all “worth” it, but I am grateful beyond words for every gift that comes my way.
I bow my head to each one and say thank you, thank you, thank you.
Because there is nothing– and I mean absolutely nothing– I take for granted.
Living life in this way gives me greater joy than I’ve ever known possible.
I have my son to thank for that.
Being his mom is the best gift I’ve ever been given.
Even death can’t take that away.
Beautiful. Shared. Xxxxxxx
Beautifully written, we lost our Daughter at birth and our Son at the age of 22, 3 years ago. I haven’t worked since, some days it is even hard to get out of bed. There’s a hole in our hearts that will never go away.
I lost my son 1,15,2015 he was 8 only child …
I too know the bed situation .. It’s not a hard life we live it’s a battle we live and we stay tiered because we are constantly fighting for life….
My son left me and this world in my arms on July 4, 2015. He wasn’t declared officially dead until July 7. In my heart and soul I know his true departure from this world. I struggle with the pain of my heart and the intelligence of my mind in knowing he is in heaven with God. My selfishness wants him here with me. I know that for the rest of my life I will long to hold him, touch him, and kiss his cheek. Although he was 39 years young, he was still my baby and I cry for him daily.
I’m sorry.
I am so sorry Marilyn, I to just lost my son Kory he was 35 lived with his mother and then me most of his life he was a beautiful person always had something nice to say about everyone always helping everyone even tho he suffered with pain most of his life see he was born with a stroke at birth they tried to hide it from us for 17 months but had to tell us the truth so Kory went on with life had grandma seizures until he was 17 years old what a happy day that was that he was cleared from those. so as he got older he was loved and liked by most he had contact with through his life he worked until about 3 years ago when he got in so much pain he just couldn’t work in any more so I moved in with him and his mother to help with the bills and to get him some help from doctors, and I took him to a lot of different doctors he finally got disability so that helped with some of the stress in his life, we did everything together dinner out going to the store over to friends or just taking a drive we were always together. never really got a true diagnosis for what was causing all of his pain, but no matter what as I have said he was always there for you no matter how he felt it was all about you. then sometime around Christmas 2016 everyone in are family started getting sinus and colds one or two at a time starting with my grandkids until it got to Kory he caught the cold so we treated it like everyone else cold meds but with in a couple three days his changed and I got worried about him he was running 102 Temp Plus, and talking funny and seamed to be having a hard time breathing at times so took him to an emergency room and they took vitals And draw blood Gave him IVs of fluid For dehydration.BUT NEVER checks his lungs Even With a Stethoscope on his back. Then they said he was okay and sent us home. The next day he got worseAndy collapsed at the houseAnd the fire department head taking to the Major hospital There’re they had to In put a tube down his throat to help him breath and to get enough Oxygen To his brain I couldn’t get enoughOxygenThrough his lungsThey Tried everything they could And they didn’t have the right machines To save his life So we have been transferred againTo another hospitalWhere they had the machines to bypasses his lungs.And after a couple daysThey tried to wake him upAnd he had no brain activitySo we had to say goodbyeAnd I haven’t been right centsPeople say it’s going take timeBut I don’t think there’s ever enough timeTo heal the pain that my broken heart is going throughI want to get through thisBut I feel so bad for Kory and miss him so much!!!!! I don’t know what to do. and this is coming from a guy they has been through a lots of crap and always had a way to SurviveI’ve been surviving Since I was 12 years oldBut I don’t know how to survive thisSo any help would be appreciatedYour
grieving friend Kim